Tuesday, June 24, 2008

What Now?

(David here)
Well last night was incredibly long and sleepless - shock! Brenna has a temperature! It is only 100 but is has gone up from 99.9. They gave her advil (easier to spell) right before they took her temp at 99.9 and in an hour went to 100. They are watching it - for now and in a few hours they will give her tylenol. Her left eye is beginning to swell - I assume trauma from the surgery.

Good news - (or Blessed news I should say), Dr. Clarke, the epileptologist, said he thinks they got enough seizures recorded last night (the first night, when it was to take 4-5 days!) So this is a huge act of God, I believe. So her next surgery is tenatively planned for Monday. So everyone can continue praying for her, but now more specifically for Monday plus the fever to go away!!!!

The surgeon is leaving today and will be gone for a few days, but will be back on Monday for surgery! On the MRI today (procedure after a surgery) they saw fluid, but it is not causing pressure at this time so they aren't too concerned. If the fluid builds then we could quite possible have an extra surgery to remove the leads before the Monday surgery. Several problems arise if this needs arises. 1. Dr. Boop (surgeon) is gone. 2. We want Dr. Boop. 3. The other Dr.(s) that would do it - I am not confident with!!! So PRAY ALSO for the fluid to not cause problems and that the leads don't 'need' to come out before scheduled surgery.

[All the above is informational without the big Dad's heart...the following...Dad's heart]
I knew ahead of time that this wouldn't be a piece of cake. One brain surgery is hard enough, two is too much, three - you think would be just a part of life (ha), four ridiculous and now we are at a point where we could have 'an extra' surgery - what in the world!

She is in a lot of pain! She had a hard time waking up yesterday from the surgery and has been lethargic a lot today. At one point today she was having seizures during her nap that registered on the monitor she is hooked up to, but I didn't know it because she didn't whine in her sleep and I think they didn't manifest themselves as stomach aches! Her hands were shaking one time and she wasn't speaking words that made any sense -- okay that frightened me! Reminded me of her big seizures she had while on protocol. Dr. is now trying to keep her calm (no seizures) and pain free. HEY THAT SOUNDS LIKE A GREAT IDEA!

A good thing is that she is complaining more - good because she is communicating more often and better. She is getting a back ache from laying down in bed so much, her throat is sore from tube down throat and head aches...she's miserable. Oh Lord Jesus, grant her physical peace!

As a father, this is killing me - I can't do anything to take away the pain nor can I speed up the process of recovery. This is where patience is tested at its best (or worst!)

Through all of this though - God has been here for us - praise HIM for that

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